被诊断出患有慢性疾病，它不仅影响了我。我们肯定有一些挑战，但这确实使我们的关系更加牢固。作为母亲，作为妻子的溃疡性结肠炎生活在很多方面都影响了我。我想您可以与一个健康的人说，而无需诊断出溃疡性结肠炎，您知道，您可以蓬勃发展，并且只要过着正常的日常生活。因此，对我来说，妈妈总是很疲倦。我总是很累。当我有耀斑时，妈妈可能无法参加您的演奏会。我可能无法在晚上做晚饭。因此，它影响了我生活的各个方面。我经常为自己或觉得自己感到难过，为什么这发生在我身上？ I have two kids. I’m trying to do the best I can. But literally, my body was fighting itself. And then in my marriage, I’ve been married to my husband now for 12 years. And the funny thing is, sometimes I feel like he didn’t sign up for this. I literally was diagnosed after our one-year anniversary. My husband and I met in college, so we would have fun and, you know, just enjoy life. And then all of a sudden, we get married and then his wife has a chronic illness. And as far as in our relationship, we definitely have some challenge, but it really made our relationship stronger. You know, my husband is my care partner. When I was not able to take the kids to school or pick them up or make dinner, my husband stepped in. So, I really appreciate that, just to have a supportive partner in this journey. Like I said before, being diagnosed with a chronic illness, it affected not just me. Even though my husband and my kids was not officially diagnosed with it, they were diagnosed with it because they still had to help me go on. We had to get through this together. So it’s been challenging, but I feel like it’s just made my family stronger.
