Ten RA Advocates You Should Follow
随着每一个在类风湿关节炎(RA)社区共享的声音,越是接近代表我们所有的思想,感情,痛苦和需求。总之,我们正在创造一个安全的空间学习和倡导自己和他人。HealthCentral想感谢谁已与RA分享您的经验你们每一位。你赞赏。
选择十倡导者
这里的10个拥护者被选中是因为在社会,奉献给RA的宣传,有能力花时间去一步在满足社区的独特需求。这些主张飘过了RA的诊断受此疾病影响,并找到了一种方法来支持这些需求我们生活的所有其他领域。
里克·菲利普斯:RADiabetes
莫莉施赖伯:然后你就在贾克斯
Mollyadvocates for both RA and Type 1 Diabetes. She is also active in community-advocacy events and on社交媒体,在那里她分享了她一天一天的斗争和胜利膝关节手术的照片和所有!
Two big recent efforts were #Save32MIL, a non-partisan Twitter campaign for sharing why healthcare is important. Molly also teamed up with other health conditions to create a Facebook page that provides supplies to those with chronic illness during Hurricanes哈维和Irma.
基尔斯滕·舒尔茨:没有坐以待毙病
Kirsten倡导的各种问题,通过她的博客与慢性疾病,社交媒体, and health sites. She is often a participant and/or guest speaker at health engagements. In addition, her training as a sex educator allows her to address the sexual issues related to chronic illness. Kirsten created and runsChronic Sex,一个网站和播客这一提议的资源和指导。她还举办每周一次推特chats.
琳恩安德森:坐姿查看
Leneis no stranger to living with chronic illness, as she developedjuvenile arthritis到了四岁。她一直是RA界多年的一个组成部分,她分享她的故事和宝贵的客户信息RAblog和社交媒体, and as community leader onHealthCentral. She is also an author ofbooks与RA的生活。作为一个摄影师,琳恩主张残疾的认识,同时分享日常生活的美丽。
布里特Johnson and her mother, Jody: The Hurt Blogger and Rheumer Has It
Life According to Kenz
Mariah Leach: From This Point. Forward.
Besides being a mom to two young boys and one on the way,Mariahwrites for several different websites about everything RA, including intimacy, parenting, and legal issues. She also spotlights community members on her blog. Her main passion is helping moms or soon-to-be moms with chronic illnesses.Mamas Facing Forwardis her Facebook group encouraging and supporting mothers at all stages.
Matt Iseman: Celebrity Advocate
Matt Iseman is a喜剧演员,actor, and host ofAmerican Ninja Warriors, as well as a doctor. Plus, he lives with RA and spends time advocating for the disease. Matt recently competed on and won新名人学徒, donating the proceeds to theArthritis Foundation. Matt is also a spokesman for共同决定, an educational initiative from Janssen Biotech to support and empower people living with RA; he participates with fellow advocates and hosts educational videos.
医生劳瑞:心理学家
When originally diagnosed with RA, a person’s initial concern is not about mental health. However, time has a way of helping us understand that RA is about more than just our joints. Dr. Laurie, a health psychologist and vice president of education forCreakyJoints, is a powerful advocate for RA. She has written numerous articles providing tips on managing depression and negative thoughts, looking to the future, and much more.
关节炎国立研究基金会
The Arthritis National Research Foundation has set out to #CureArthritis. To make this a reality, they provide grants to scientists who get the initial research started. Funding for this charity is accomplished by fun campaigns that bringawarenessto arthritis through races, bracelets, T-shirts, patient stories, and an upbeat and energized team of advocates.
We are all in this together
It is an exciting time to be in the RA community. Together we are growing and helping each other to meet the needs that come with living with RA. Thank you to the 10 advocates profiled here. Your work is so valuable.