Real-life Advice for Dating With MS
约会these days can be a roller coaster, and if you add multiple sclerosis to it, you might feel like you’re strapping into the front seat on Space Mountain, whipping around curves in the dark. But it doesn’t have to! After my diagnosis with relapsing remitting MS at 21, I learned a lot about how to brave the world of dating with a chronic condition, but also how to take care of myself in the process. Keep reading for some of my most valuable tips. Plus, I included some thoughts from my friends who have also found love while living with MS.
Be Honest With Yourself
第一步,找到与别人真正的和连接的爱是诚实面对自己什么你真的寻找到启动马上。你只是想玩得开心吗?你是否想你的知己?有没有正确或错误的答案,但这种意识的确认可以是你决定如何与将来的日期互动至关重要。而且,是的,这个你是否有MS与否是约会真。
Real Talk:“If you are dating with the express purpose of finding a life mate, I strongly suggest being open about it in the early chatting phases. For some people that might feel like you're 'putting too much' on someone, but if they're going to be scared away from it, they're not the person for you.”- 艾米,斯特林高地,MI,确诊28
Tell Your Partner ASAP
一个MS交友者中最常见的问题是,“当我告诉我的诊断潜在的合作伙伴?”答案是越快,而不是以后。你要失去的仅仅是一个人的时候,你最需要它们的谁也不能支持你。
Real Talk:“There is no magic formula to sharing your life, just feel safe and comfortable. Not every relationship will last long enough for this 'individual magic formula.' The best person to share your diagnosis with is the one who is willing to listen and understand.”- 古斯塔沃,瓜鲁柳斯,巴西,确诊24
是过解释器
大多数人都听说过MS的,但并不精通意味着什么,这对您有利。请解释MS是什么,但更具体侧重于它如何影响你。你是下午5点到筋疲力尽周日的夜间上?是不是很难让你走很远?或者,你大多走症状少,直到一个惊喜耀斑弹出?如果这是他们第一次近距离和个人与一个有着MS,你有一个很好的机会,教育,也表明他们在条件非常不同的观点。机会是,如果你是积极的,充满希望,他们也将如此。
Real Talk:“我将前期和清晰yourMS looks like “x”, but that it is different from person to person. I know that’s not always the easiest, but the worry comes from the unknown.”- 林赛,波特兰,俄勒冈,确诊25
Leave the Door Open for Questions
Once you’ve shared your diagnosis with a new person, it’s possible that they may have some questions and the best (and most brave) thing you can do is to be an open book with your answers. This allows you to control the conversation aroundyourMS,不会离开你的伴侣的一切,他们发现在谷歌摆布。而是藏身,给你的伴侣和你自己要问什么的权限。
Real Talk:“MS不是死刑。是否吸?是!但是,这也就是不是你可以“隐藏”长“。— Carly, Detroit, MI, diagnosed at 26
围绕疲劳计划
You know your limitations and the consequences of going over those limits. Plan dates that are fun, but that won’t wipe you out. If your new boo plans something that sounds like a blast, but you’re worried about looking lame if you say no, imagine how lame you’ll feel if you’re napping in the car ride home. Save the high-energy excursions for later in your relationship, so you can focus on getting to know each other as opposed to counting down the minutes until your head hits your pillow.
Real Talk:“有些时候我可以做到这一切工作,跑腿,杂耍家庭和乐趣。但我一定要安排休息时间相等的;能源我“借”我已经把背“。— Lindsey
拥抱你的限制
Agreeing to do things that are difficult for you is just silly. MS is something that is going to be with you every day so if you have limitations because of it, it’s best to share those limitations with your partner-to-be, that way you can work together to plan things that you both enjoy (or have “Me Days,” where you go your separate ways and do whatever you like). Not only will you have more fun on your outings, but you’ll also be able to ditch any guilt you feel for having to sit anything out.
Real Talk:“Be prepared to accept some limitations. Sharing your fears and uncertainties is the key to engaging your partner in your daily life. “— Gustavo
Be Honest About Bad Days
Holding back information can lead to fear, guilt, and even resentment. all of which are sure to squash any budding relationships. Sharing your needs with your partner is an opportunity to invest in your relationship in a vulnerable and meaningful way.
Real Talk:“An open line of communication is necessary to get over speed bumps that come up due to the disease. If you can have that open line of communication, you will grow closer together and can work together through the struggles you may face.”- 兰迪,东北,MD,确诊30
帮助他们帮你
If you need something from your partner, let him or her know. When a relationship is new, you’re both doing your very best to learn about the other person and how you can support each other. Give your new person a leg up and tell them exactly what you need when you’re fatigued, flaring, or just need an extra set of hands at the grocery store. The people who are sincere about helping you will appreciate the direction and will be more equipped to support you when you ask for it.
Real Talk:“我的妻子有MS,以及一些已经帮我支持她是知道她的能量是在之前我回家。我们做了1-10办理入住手续,1为最低能量等。这可以帮助我接管当我到达,并确保她能得到她需要休息。”- 贾森,林赛的丈夫
寻求一线希望
你的能力会随着时间改变,但不是专注于你不能做什么了,重定向你的思维,以新的方式,你可以享受的东西与你的S.O.当我问我老公我们是如何改变了我们的经验在一起,因为我的MS,他说,“我不认为我们已经不得不除了更好的ALTER任何东西!我们得到了在节日音乐会更好的座位,好车位,并更好地露营地!”有时候事情,你想抱着你回来了,居然打开你到更好的体验!
Real Talk:“我曾经通过我的感觉来到过时的想法得到真正气馁。但我没想到的是,被抄袭“通用日期”这可能会耗尽我,我强迫自己在策划更多的创意,我已经得到了做一些很酷的,因为它的东西。谁在玻璃吹制或满贯诗歌朗诵第一次约会?我做。”- 安娜,佐治亚州萨瓦纳,确诊22