9种方式来支持合作伙伴的转移性乳腺癌
让我们先从一个转移性乳腺癌的诊断是什么not: a death sentence. In fact, as many as 34% of the 154,000 women with this diagnosis have survived five years or more. True, that’s not as comforting as the 90% who make it past five years with stage 2 breast cancer. But with the right treatment, many women can and do live long lives with MBC. Still, it’s scary, and a solid support system can make a huge difference in day-to-day life. These strategies can help you help your partner navigate this stressful time.
Team Up for Appointments
From surgery to chemo to targeted therapy and complementary treatments, there are tons of options for aggressively tackling this disease. It’s a lot to take in. She might say she can go by herself, but doctor appointments will be loaded with info that’s hard to retain under the best circumstances, let alone when your mind is racing with “what now?” thoughts. Volunteer to be her extra set of ears and personal note-taker, says Kathleen Ashton, Ph.D., director of behavioral health at Cleveland Clinic Breast Center.
Run the Communications Department
术语转移性乳腺癌是不是开玩笑,这是自然的朋友和家人会想知道的最新发展。也自然:他们会犹豫,你的合作伙伴直接联系,生怕惹恼她或侵犯她的隐私的。它可能是太多,因为她会留下来,对本病的顶花费的能量她让每个人都在循环,反正。这往往有助于合作伙伴来接管提供更新的作用,Ashton说。
Coordinate Efforts
当心爱的人病了,每个人都想帮助,它可以是一个祝福,以保护你的倦怠,Ashton说。朋友或家人可以使饭菜,打扫房子,或者去接孩子。为了充分利用每个人的慷慨,做家务事的列表可以报名参加,包括你和你的伴侣时,她觉得干练。让她参与组织过程将使它更容易调整的东西她能量的变化,增加了医疗顾问芭芭拉Kivowitz的合着者Love in the Time of Chronic Illness。
分享在线研究
MBC的诊断是一个装一个,以作为作为合法的英特尔多的虚假信息在那里。从有信誉的网站收集的数据和建议可通过情感的东西切割并获得直接的事实是有用的,Kivowitz说。看看喜欢的网站breastcancer.organdSusan G. Komen, which offer science-based info and community support. You can keep a paper or electronic file of helpful resources to look at together during moments of uncertain thoughts and feelings.
避免信息超载
在硬币的另一面,互联网可以a dangerous rabbit hole, with one website leading to another. While knowledge is power, it’s possible to have too much of a good thing and that can cause both of you to obsessively research a condition for which there is still no cure. Consider setting a time limit—30 minutes, say—that you spend googling MBC on any given day. Keep in mind, too, that metastatic breast cancer treatment is highly individualized. Online stories, both good and bad, don’t always apply but can easily increase anxiety, Ashton says.
Schedule Say-Anything Time
有时,它可以是镦尴尬谈附带的MBC诊断,包括最终的生活护理对付难缠的东西。这可能是每星期预留指定的时间有用的,当你都可以表达自己的感情,Kivowitz说。一个人的会谈,其他监听。然后切换。至于困难,因为这些对话就可以了,这一点很重要转达同情和赞赏,她所说的支持她。“这是一个重要的提醒,” Kivowitz说,“这种疾病并没有消失,但你也并不孤单。”
癌症组织无天
约会和治疗期间,转移性乳腺癌可以主宰你的生活。没有意识到这一点,很容易让你开始你的伴侣的思想作为一个病人,而不是同伴。现在比以往任何时候,它为了庆祝你们的关系是非常重要的。计划定期日期一起,找出治疗之间的时间时,她会感觉更好,而且是灵活的备份,以防她不是弥补了原来的计划。最重要的是,确保这种疾病得到谈话休息,Kivowitz说。
庆祝自发性
Like any disease, metastatic breast cancer has moments of ups and downs. You’ll learn the rhythm of treatments and when you partner’s energy is higher or lower. Make plans for those feeling-good windows so you both have something to look forward to. But most of all, be ready to drop everything and go for a sunset drive or morning walk—just because you both feel like it. Energy levels can change day to day, Ashton says, so keep a list of ideas handy that can you can act on quickly.
建立每周仪式
它可以打牌,上一个难题的工作,或是长时间观看Netflix的系列。如果它使你都笑,甚至更好。没有人要求你假装一切都很好,但它是保持尽可能多的光时刻,可能很重要,Kivowitz说。当你通过难以估计水域韦德联手即使是预定的正常可提供备受所需的稳定感。“它创造了一个意义上说,如果我在这一刻没事了,”她说,“我会好起来的。”
- MBC成活率:临床肿瘤学会。(2020年)。“乳腺癌 - 转移:统计。”cancer.net/cancer-types/breast-cancer-metastatic/statistics
- MBC成活率:苏珊科曼。(2020年)。“转移性乳腺癌。”komen.org/BreastCancer/MetastaticBreastCancerIntroduction.html
- MBC治疗:Breastcancer.org(2020年)。“转移性乳腺癌。”breastcancer.org/symptoms/types/recur_metast