如何处理孩子杂耍和克罗恩的

导航克罗恩作为父母的第一步是循环循环您的育儿支持小组，无论是您的伴侣，子女的祖父母还是大家庭。杰西卡·格森（Jessica Gerson）博士学位，一名高级心理学家炎症性疾病中心在纽约市的NYU Langone Health，建议您分享您症状的偶尔使人衰弱的性质，以及您对孩子们需要的帮助。她说：“您想在糟糕的日子罢工之前制定游戏计划。”这将有助于减轻额外的压力 - 可以恶化您的症状- 爆发。

“I have Crohn’s and my husband travels for work, so a few years back we created a master document with all the information someone could possibly need to take care of our children if we were both unavailable,” says Georgia, 42, a New York-based parent of four kids between the ages of four and 12. She updates it every semester and emails it to her parents, in-laws, and a few family friends. “We haven’t had to lean on our support team in nearly two years, but having the document eases any anxiety I have about my Crohn’s and parenting.”

格森说，让克罗恩的不应该是你对孩子隐藏的东西：这种诚实应该减轻一些压力。“Before I told my kids I had Crohn’s, whenever I had a flare-up, I became an emotional mess that I was a bad Mom because I would simply not show up to things I’d promised I’d be there for,” says Monica, 49, a New York-based single mother. “I told my kids when they were eight and 12, and if I could do it all over again, I’d do it much earlier,” she says, noting it has since saved her and her family a lot of heartache.

格森说，通过建立一种家庭文化，您可以在其中谈论肠动和混乱等事情，您可以帮助孩子们看到生病并不羞于感到羞耻。告诉您的孩子还可以帮助他们了解可以被诊断出患有的疾病：有些20％在克罗恩（Crohn）的人中，有父母，孩子或兄弟姐妹患有这种疾病。当您告诉他们有关症状的信息时，Gerson建议强调积极因素：您有诊断，您正在与一位出色的医生一起工作，并且您会没事的。她建议：“向您的孩子放心，以免他们变得害怕，而要诚实。”

这是康涅狄格州12岁双胞胎的父亲菲尔（Phil）44岁的菲尔（Phil）学习了艰难的道路。他说：“与我的药一起练习瑜伽可以帮助我多年来克罗恩的症状。”但是，当大流行迫使学校虚拟时，菲尔从做瑜伽转变为扮演数学老师。在2021年冬季，他十年来首次重大爆发。他说：“自从我重新进入缓解以来，我一直致力于瑜伽。”“爆发提醒我，我需要优先考虑自己的健康才能作为父母。”

苏珊娜（Susanna）是一位32岁的马萨诸塞州父母，他在签约陪同下一次实地考察时感到A-OK。The morning of, however, her Crohn’s symptoms flared, she says: “As soon as I took my first trip to the toilet at 4 a.m., I knew I wouldn’t be able to go and texted the fieldtrip supervisor,” whom she had previously informed about her condition. The supervisor wasn’t the only one Susanna had prepared for this possibility. “I told my daughter that Mommy was going to do her best to come, but that if my body wasn’t up for it, I would have to cancel at the last minute,” she says.

在克罗恩病育儿时，格森建议她称之为“明确的计划”。她解释说：“这涉及制定实际计划以及备份计划，以防您的症状阻碍。”它使您能够按照没有慢性病的父母制定计划，同时也承认拥有克罗恩的不可预测的本质。毫无疑问，这种准备工作需要大量工作。但是，正如苏珊娜（Susanna）所说：“通过制定计划和备份计划，我（和我的孩子们）在身体健康时露出我的礼物。”

临床营养师朱利安娜·塔玛约（Juliana Tamayo，R.D。Medstar华盛顿医院在华盛顿特区。她解释说，在不规则的时间跳过饭菜，暴饮暴食，bing和进食会使症状恶化。拿一个午餐袋会有所帮助。“我的伴侣在大多数日子里工作直到午夜，所以我每周五个晚上都要接班，”缅因州43岁的父母加布里埃尔说。她说，当她的女儿足球直到晚上7点时，“我在吃饭和观看时带一桶食物坐在看台上，”她说。“这不仅使我的身体快乐，还可以让我看到她的比赛。”

成为克罗恩的父母意味着要制定一些关键策略，以使您的袖子与育儿和育儿和计划尽可能多地计划。格森说，首先向自己展示一些自我同情。她说：“许多患有克罗恩（Crohn）的慢性病的父母经历了内部冲突，围绕着他们花费多少时间和精力来管理自己的状况。”但是，您应该更多地将其视为对家庭健康和幸福的投资。她说：“作为父母，当您照顾好自己时，您会为自己做出最好的父母。”