厌倦了疲倦:用慢性疲劳生活

经过Lene Andersen, MSW 病人倡导者

I am so厌倦了累了。

每当我睡着时,我会睡在睡觉或晚上睡觉,就像一两分钟内的光一样。当我醒来时,我觉得我可以睡觉。我的强制性休息时间(即每日午睡)比以往任何时候都更加必要。

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It's been ages since I've woken up feeling rested. Ages since I wasn't carrying around a mantle of bone-crushing fatigue. And I have no idea why.

我很幸运,我正在为我的RA工作的药物。它适用于炎症和疼痛,以及疲劳。好吧,达到一点。我有足够的能量如果我一整天都没有甩掉我的拇指。我这样做,但我做了更多。事实上,我可能做得太多了。这可能与疲劳有关。

你认为,Lene ??, my inner voice says sarcastically. She often uses that tone of voice with me.

Biweekly B12注射有助于他们,我无法做到我所做的工作。我的强制性休息时间也是一个救生员,也是我最近发现了多少。在上周削减两个短片后,我用疲惫扁平了。我称之为强制性的原因。显然,有时甚至我需要提醒。

我告诉自己它必须与冬天有关。北美的其他众多其他地区,多伦多从一个极其严酷的冬天恢复过来。寒冷,黑暗,雪,它戴上了我们的冰。花了几分钟捆绑并在后面回来时再次捆绑所有的捆绑。来到2月,布拉斯队进入或甚至可能是季节性情感障碍。没有足够的光线耗尽。当太阳出来时,享受它通常太冷了。

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患有慢性疾病的美国人的人甚至被赛季被殴打的易感。无论我的Meds工作多么好,冬天都是难以忍受的,不可避免地带来了我的Ra和纤维肌痛。谢天谢地,我的医生在船上有类固醇镜头,有时候我认为这是唯一让我走向的东西。

我考虑疲劳是否与磨损有关。2月我感冒了,但谢天谢地没有intense as last year's。这一演变为鼻窦感染stayed its welcome by a few weeks and contributed to the exhaustion. Between the cold and sinusitis, I had to skip my biologic several times. Not so much that the RA came roaring back, but enough to chip away at my energy. It is the reverse effect of when the medication starts to work and you can tell by the energy that slowly increases.

所以我尽我所能来管理我的疲劳。我睡了,我睡了,我吃得健康。我用医生允许的方式使用类固醇镜头。维生素B12也有助于。我意识到太多工作了,并试图在合理的时间停下来。我周末休息。

尽管日常小睡,时间管理,奶油类固醇镜头,B12的覆盆子良好,我耗尽了。我的身体哭泣睡觉,我的思绪是疲惫的雾气。我渴望夏天的热情感觉,夏天的一天可以带来,从痛苦中缓解,看到绿色的喜悦。我渴望一切我的身体,衣服,那一天感觉不那么沉重。

有时候我认为Ra的疲劳比疼痛更差。没有被痛苦的激烈感受袭击是在公园散步。然而,我有处理它的工具,并且只有我思考的能力,只有严重的痛苦混乱。另一方面,这种疲劳让我全心全意,身心,觉得我在糖蜜中游泳,每一个举动,每一个思想,每一句努力。

春天来了。生活将会回归。

当它到达这里时叫醒我。

迎接我们的作家
Lene Andersen, MSW

Lene Andersen is an author, health and disability advocate, and photographer living in Toronto. Lene (pronounced Lena) has lived with rheumatoid arthritis since she was four years old and uses her experience to help others with chronic illness. She has written several books, including Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain, and 7 Facets: A Meditation on Pain, as well as the award-winning blog, The Seated View. Lene serves on HealthCentral's Health Advocates Advisory Board, and is a Social Ambassador for the RAHealthCentral on Facebook page, facebook.com/rahealthcentral. She is also one of HealthCentral's生活大胆,现在生活英雄 -看着她令人难以置信的生活与Ra生活。