问题
希拉·伯格提问
青少年偏头痛，504个计划和疼痛
我那16岁，学术上很有天赋的学生刚刚被儿科神经学家诊断出患有慢性偏头痛。我们下周要开会讨论她(CA学校)的504计划，我想知道除了修改和延长化妆时间外，我们还需要寻找什么。到目前为止，她的老师一直很支持她，但还没有结束的迹象，我们正在考虑长期的住宿，并确保她能得到照顾。
至于她的偏头痛问题…今天是她偏头痛发作的第18天。她现在根本无法胜任任何工作。她被告知，必要时每周只服用2天急救药物(Maxalt)。医生认为她有反跳性偏头痛我怎么能让她这样受苦呢?任何真知灼见都将受到欢迎。
回答
希拉，没有人愿意看到自己的孩子遭受任何痛苦，我能理解，也能同情你。我不愿看到我的孩子们受苦。我要讲几点，请大家耐心听好吗?首先，我很高兴你和学校一起采取行动，他们也在积极主动地采取行动。对于学生的504计划，并没有一个固定的答案。答案很大程度上取决于你女儿的偏头痛诱因，当然，也取决于她个人的需要。你可能需要和她的高中辅导员和医生谈谈这个话题。她的医生应该能够帮助你预测她的需求，而辅导员也会有其他学生的经验，我们在论坛上有一个主题叫“儿童和偏头痛”来解决这些问题。这是链接，请过去看看。许多父母都经历过你们现在的处境; Children and Migraine. She really can't continue to go on with this continued daily pain. Has the doctor offered anything to break the cycle? Unfortunately, there can be times when a Migraine just doesn't respond to the medications we have, and it goes on and on. Seeing as her regular medications haven't stopped this Migraine, it's time to talk to the doctor about breaking this cycle. Sometimes, a steroid taper such as a Medrol DosePack will break the Migraine. Sometimes, the best treatment for intractable Migraines that aren't responding to medications is IV infusion therapy to get the cycle broken. For more information, see IV Treatment of Refractory Migraine. Which leads me into my next point. It may be a good idea to see a "true" Migraine specialist. I say that often here, but it really is the one thing that can make all the difference in the world. You see while neurologists may be fine doctors, they have a hard time being experts in one area. This is because they treat so many conditions like MS, epilepsy and stroke. A Migraine specialist is just that, an expert who treats one condition - your daughters - Migraines and headache disorders. When you get a chance, take a look at article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists. I hope you find this information helpful, please let me know how you make out, Nancy