我认为自己是一个经验丰富的老将在the inflammatory bowel disease (IBD)game, as I’ve been living with ulcerative colitis (UC) for almost 10 years and have spent much of my life connecting with this community and advocating for it. I am well-educated on IBD issues, especially those that involve ostomy and J-pouch surgeries, and I pride myself on teaching others about IBD.
所以，想象我惊讶的是，当我我的第一小肠梗阻（SBO）上个月他，结束了在医院, and realized I really didn’t know anything about this fairly common complication of Crohn's disease (in fact, it’s the最common complication ofCrohn’s disease, according to theCrohn’s and Colitis Foundation). And what Idid了解大豆低聚糖不一定是正确的。但没有更多。现在我有第一手的经验来备份我的知识，我已经准备好与他人的希望，他们不会因为毫无准备，因为我是分享。
Here’s what you need to know about SBOs.
Myth #1: Small bowel obstruction is a blockage, and that means there is food stuck in the intestine.
Truth:This one iskind oftrue, but not the whole story. In the past, when I used the term “blockage” to talk about obstructions, I always pictured a giant piece of food lodged in the intestine, refusing to budge. And while food can definitely be a cause of a blockage,it may not be the根原因根据梅奥诊所。
In my experience, swelling in my small intestine ended up being the main cause. The swelling got so bad over time that digested food began to back up, causing the eventual blockage. The cause of the swelling is unknown, but my doctor said there was nothing I did, or didn’t do, that caused it.
误区2：你几乎总是可以在家里解决了堵塞。
Truth:我的假设是用加热垫，一些温暖的茶，并手动推你的腹部，以帮助魔术踢你的肠子成齿轮下，你可以解决许多，如果不在家，所有的堵塞。它老老实实如此尴尬，现在说。
I tried all those things when I woke up with severe pain, and none of them helped, and in fact, drinking the tea made it worse because I was completely blocked. If you have a partial obstruction or the beginning of an obstruction, using the above-mentioned tricksmay你仍然可以工作，但他们肯定不是万能的。
After my SBO, I asked the doctor: If this happens to me again, do I需要去医院吗?他说,是的,我的爸爸in will be bettermanaged at the hospitaland that it may take less time to get the blockage moving with the help of a nasogastric tube (NG). Bottom line: Any time a patient has severe pain, nausea and vomiting, they need to go to the hospital immediately.
一个真正的小肠梗阻是一种外科急症很多时候，需要立即手术一旦确诊为CT扫描。对于只有那些谁不认为是一种理想的手术候选人或“可能SBO”报道，成像或部分SBO，可能会建议保守治疗，即鼻胃管减压，肠道休息，并没有用口状态（NPO）。
Myth #3: The symptoms of a bowel obstruction are always pain and the inability to poop or pass gas.
Truth:It’s true that the inability to poop or pass gas are verycommon symptoms of SBOs根据梅奥诊所，他们不应该被忽视。对于我来说，这是不同的：我没有那些症状，直到为时已晚。我醒来的时候，在上午02点半以强烈的腹部疼痛，但直到那时，我才意识到我是无法通过任何东西。但是，当我想到以后，我才意识到我的身体已经给了我一些微小的线索，有什么事之前错了，但我还不知道要寻找什么。
Symptoms of an SBO can also include unexpected胃灼热（我确实有，即使我没有吃过这通常会引起烧心的任何东西）。另一个症状是，由于缺乏一个更好的词，真是恶心burps- 至少在我的经验。我说的一样很臭，经常打嗝。我的丈夫开了个玩笑，我认为晚上，我的打嗝是特别总值（GDP），这是不寻常的我，但再次，它似乎并不像东西予以关注。胃灼热和打嗝是日益严重的问题的症状，宝宝在我肚子里，现在我知道的那些症状，我会更快采取行动，以防止堵塞全下一次。
Myth #4: Surgery is reserved for only worst-case scenarios (like total obstructions, not partial ones).
Truth:This is simply not true. More than half of all SBOs will resolve with conservative measures, such as NG tube decompression and gut rest. After my CT scan in the ER, I was told that it wasn’t a certainty that I’d need surgery but that they were admitting me onto the surgery floor just in case. In fact, the prospect of surgery didn’t to go away until I had already been there for a few days—but at no time did my medical team make it sound like my blockage was unusually serious or threatening.
Turns out, surgery is reserved for when nothing seems to be improving, but it’s not necessarily dependent on the严重of your blockage, per哈佛健康. So: If you have a partial obstruction, but a nasogastric (NG) tube and bowel rest are not helping to improve it, surgery may still be on the table. If you have a complete obstruction, but after a few days it starts to break up or move, surgery will likely not be necessary (as was the case for me).
Myth #5: NG tubes aren’tthat坏。
Truth:我可以坦率地说？NG管是有史以来最糟糕的事情在不断的历史上（至少在我的经验）。在我多年IBD的生活，我已经不知何故设法逃避可怕的NG管，所以一切我知道我已经学会了二手。An NG tube, according to Harvard Health, is a flexible, lubricated tube that’s inserted into your nostril and then goes down your throat and into your stomach for the purpose of decompressing the stomach and part of the small intestines that gets dilated in front of the blockage so there is less pressure tightening the area of blockage. It also happens to suck out anything that is lingering in there due to the blockage. It helps to remove pressure and makes less work for your body.
I’ve heard my friends say how awful an NG tube feels, but most things in the hospital are awful, so I didn’t think it was anything worse than the norm. I was wrong. Maybe I’m speaking for myself, but the NG tube was one of the worst medical experiences I’ve ever had. It was painful, uncomfortable, and really, really annoying.There can definitely be value in having an NG tube inthese situations, but I sincerely hope to avoid them from here on into forever.
底线
尽管是IBD社区多年的一部分，是非常连接到其他病人来说，很明显仍东西，我不知道IBD。我承认有那种感觉愚蠢的，甚至这个可耻的，因为我担心我可能已经最小化，在过去，因为不知道其他人的经验，我的一部分。
所以把这个作为一个友好的提醒每一位病人，主张在那里：我们的经验并不总是我们的社区。这就是为什么我们需要记住的是开放的不断了解我们自身条件的所有时间。