如何成为这样的健康拥护者#bloodclotsurvivor

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Here at HealthCentral,we know that you want to live a life beyond your disease—maybe even reach some goals that others with (or without) your chronic condition wouldn’t even attempt. But what if that goal has actually beeninspired按照你的状况？如果多年的长期生活使您问：“为什么在被诊断出我的风险和警告信号我为什么不更多？为什么很少有a）有用的资源；b）正在进行的研究；c）有效的运动以促进知名度；d）慢性窥视可以见面，混合并合并某些集体可能的当地活动？

如果这听起来像您认识的人，那么您可能是天生的健康倡导者。那么，您如何从坐在沙发上到生成国家或全球的生成状况？How do you become a force to be reckoned with?为了指导您的努力，我们组建了一支专业团队，以帮助您采取在这个为期四周的系列赛中成为慢性搬运工所需的步骤。准备利用您的力量了吗？我们走吧。

Meet “Everyman” Todd Robertson

十一年前，现年58岁的皮划艇和独木舟的讲师托德·罗伯逊（Todd Robertson）在爱荷华州得梅因市（Des Moines），在一次严重的划船事故中“撕开”他的腿后，经历了他的第一个危及生命的血块。在最初的恐慌之后，他生活在另外三个凝块中，没有受伤触发，然后才被测试。因子V莱顿根据克利夫兰诊所的大约5％的普通人群中存在的一种遗传性血液凝结障碍，在北欧血统的诊所中最常见。

Now a six-time thrombosis survivor who takes daily anticoagulant medications, Robertson is passionate about spreading the word about blood clots, which affect some 900,000 Americans each year, according to the Centers for Disease Control and Prevention (CDC), and are responsible for 100,000 annual deaths from中风，肺栓塞和心脏病，其中许多是可以预防的。如果您想知道如何成为倡导者，请问罗伯逊（Robertson有关该主题的社交媒体网站, the 2021 ambassador for世界血栓形成日, and the man of the moment as he partners with theNational Blood Clot Allianceto help promoteNational Blood Clot Awareness Monthin March.

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认识克洛林达·沃利（Clorinda Walley）

Clorinda Walley, who has 26 years of experience in the healthcare industry and more than 13 years in strategic philanthropy, is the president and CEO of the charitable organizationGood Days。她是溃疡性结肠炎战士，她是背后的大脑National Chronic Disease Day这是从八年前在董事会中的一个绝妙主意到由30位美国州长晋升的，他们均签署official proclamations to recognize the day statewide。

Held each year on July 10 to symbolize the seven out of top 10 deaths (7/10) in the U.S. that are caused by chronic disease, most of which are preventable, per the CDC, the event’s goal is to raise awareness about the many lifestyle changes that can be made to stop disease before it strikes, saving precious research funds for conditions that cannot otherwise be prevented. Want tips on how to make your health concern part of the national dialogue? Walley is your woman. From tapping into social media influencers to courting influential lawmakers, she's got the right moves to get the conversation going.

Week 1: Connect With Your Feelings—and Others

Robertson, a widower, confesses that he didn’t take his blood clotting disorder all that seriously until he had his first colonoscopy in 2017, when he was mistakenly instructed to go off his medication for a few days prior to the routine procedure. “Three days later I had my first, and up until this point only, pulmonary embolism,” he says. “It went through my heart and into my lung. I thought, ‘Wow, this is an aggressive disorder. I could have died.’ It woke me up.” The experience, he says, “made me the activist I am now.”

这也使他感到恐惧。罗伯逊承认：“我吓坏了，痴迷和担心这件事再次发生。”他首先与他的G.P.联系，后创伤后应激障碍（PTSD）。“I got counseling for nine months,” Robertson says. “I learned management tools to control my anxiety and see things in a different way. It opened a new door for me. I discovered my meaning in life—to raise awareness. I’d been through hell and was blessed not to have long-term damage. I thought, ‘I’ll use this to help other people.’ That’s what I’ve done.”

What You’ll Need:

• A Social Media Account:Robertson started on Facebook, where he sought out online support groups. “I wanted to talk with other people who had been through something similar,” he explains. “I went in as a patient at first, sharing my story.”

• 您的独特故事：Sharing your experience is a perfect first step, says Walley, who believes swapping personal experiences online can eventually drive meaningful change, as evidenced by her organization’s use of推特,Instagram, a博客, and other platforms to advance the National Chronic Disease Day mission. “It starts with one voice,” she says. “There is power in numbers, and social media can amplify your voice.”

准备开放

当然，有些人很高兴谈论自己（全天。但是对于其他人来说，开放健康状况会感到可怕，尴尬或尴尬。知道您分享的越多，您就会发现其他人想要分享的人越多。罗伯逊（Robertson）的故事立即引起了其他在全国各地登录的人，甚至是地球。“我知道的下一件事，我会发表自己的意见，并指导人们在整个旅程中都经历了同样的精神痛苦。我的嘴巴很大，我正在使用它！”他以自嘲的笑声说。

五年前，当他第一次在网上开放其他人时，他几乎不知道“大口”将如何与共同的同一议程的顶级倡导团体一起发挥更大的作用：向人们提供有关阻止他们的血块的危险。

了解您的焦虑

要成功接触他人，您首先需要与自己联系。研究表明，各种各样的健康问题，从捕鱼手机版下载 胃溃疡和捕鱼平台游戏 ，会导致高度焦虑。If you’re struggling with worry or depression over a recent (or even not so recent) diagnosis, or you’re constantly looking up health information online and asking for a battery of tests to be done (even when your doc says that you’re doing just fine), help is at hand, according to a最近的报告inHarvard Health Publishing。

像罗伯逊（Robertson）一样，寻找专门研究与健康相关的创伤和焦虑的治疗师，这是可以治疗的。谈话和行为疗法可以改善您的前景，根据同一报告，药物也可以改善您的前景。

找到你的窥视

Sharing your fears and experiences with others who are in the same boat—the perfect metaphor for Robertson, whom, when he’s not advocating in person or online, spends a lot of time paddling down Iowan rivers—might be part of your personal empowerment plan, too. So haul out your laptop, type in the name of your condition on Facebook or Instagram, and do a search for it, along with the word "support." You might be surprised by the outpouring of empathy and advice you receive—and give back in the process.

Meet Our Writer

劳伦·佩奇·肯尼迪

Lauren assigns and edits articles across HealthCentral’s 90+ condition categories. She's written and/or edited health content for close to 20 years, and she’s interviewed some of the biggest names in Hollywood, music, sportsmore

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