For Anna Lysakowska, traveling is both a passion and a profession. The 28-year-old makes her living blogging about her life on the roadannaeverywhere.com, and her diagnoses of plaque and滴状银屑病haven’t kept her from exploring more than 77 countries. She is currently based in Mexico.
旅行ing with psoriatic disease, however, has its challenges. For example, there was the time the crew of an international carrier suggested removing her from the flight because they were unfamiliar with psoriasis and concerned she was contagious.
“The flight attendant asked me what was wrong with my skin in front of other passengers. As she wasn’t very discreet, other people started to look very concerned,” said Lysakowska, who was eventually allowed to stay in her seat.
Despite the humiliating experience, Lysakowska was able to prove that psoriasis isn’t contagious — but awareness is. Her explanations reassure most people, she said. In fact, some respond positively, including one woman she met on Tortuga Bay beach in the Galapagos who insisted on bringing the travel blogger home with her to try a cream her daughter had used for a skin condition.
氨甲喋呤 - - 寻找药物在此之前，她的工作，Lysakowska在旅途中往往有耀斑。然而，对她来说，触发器不明显。
牛皮癣与银屑病关节炎（PSA）人们出行过程中很容易受到耀斑，行程是商务还是休闲，梅丽莎Piliang，医学博士，在克利夫兰诊所在俄亥俄州皮肤科医生说。
“You encounter different weather and different humidity — it’s always drier on a plane, for example — which can dry out skin and make it more prone to flare,” she said. “People with psoriatic arthritis often have a different activity level when they travel; they may be walking more, taking more stairs, or hiking — things they don’t normally do that might flare or irritate their joints and cause fatigue.”
There’s also the stress associated with traveling. The planning it takes to pack and leave home, on top of worries about timing and delays, can be emotionally taxing, said dermatologist Stefan Weiss, M.D., MHSc, medical director of the Weiss Skin Institute in Boca Raton, Florida.
Then there’s the fact that psoriatic disease is characterized by an overactive immune system, and some of the treatments used to target the parts of the immune system that cause inflammation could suppress the immune system — not exactly the most ideal scenario for boarding a crowded flight.
“You’re (already) exposing yourself to potential infections through recirculated airplane air or being in crowds, (so) even simple colds, things that are mild for someone who’s not on an immunosuppressive medication, can be more serious for someone who is,” he said.
获取集
Preparing for your trip — physically, mentally, and logistically — can help reduce travel snags, stress, and the likelihood of flares, said Dr. Piliang. “Often people have some anxiety about the travel process, so starting to plan early and being methodical will help manage your stress,” she noted.
Create a pre-trip checklist to help plan your packing, transportation, and other details, including the timing of treatments, such as infusions or light therapy, that you can’t take with you. “If you’re going away for an extended period, for example, if you’re a snowbird headed south for the winter, ask your dermatologist for a referral at your destination,” Dr. Piliang suggested.
Whatever your treatment, it’s important that you don’t let travel disrupt it. “One key to keeping psoriatic disease under good control is not allowing travel to interfere with the regimen that’s been working for you at home,” said Dr. Weiss.
Piliang博士还建议获得充足的休息，预备肌肤是其最佳的状态，然后再离开。“我建议把一个沉重的，温和的保湿这是无香料和刺激的，一切都过去了，一天两次，一个星期你走之前，即使它不是你的例行常规，”她说。
If you have psoriatic arthritis, Dr. Piliang recommends getting in shape “for whatever you’ve got planned, especially if it’s more active than your usual routine. It might take a few months to build up to that so you don’t flare your joints on the trip.”
John Latella, 75, who has psoriasis and PsA and travels internationally a few times a year from his home in Windsor, Connecticut, always takes with him more medication than he thinks he’ll need. “I also plan a rest day or two at the beginning and end of my trip so I’m not wiped out,” he said.
休斯敦本地特雷西卡奇，59，谁拥有PSA，说，当她她可以升级到商务舱或头等舱。“我喜欢冲浪和第一deboarding和额外的空间。座椅是足够大的，所以我可以拉我的腿和一般转移左右移动，”她说。
Frequent flyers should consider signing up for TSA PreCheck, which gives prescreened passengers a faster trip through airport security within the United States. It allows them to leave laptops and liquids in carry-ons and keep on their shoes and outer clothes. If you fly internationally more than twice a year, look into Global Entry, which includes TSA PreCheck status and can expedite the customs process.
In the air
Once you’re in the air or on the road, minimize your flare risk by eating nourishing meals and getting some sleep. Don’t overdo alcohol, which can undermine your immune system, and stay hydrated, which can help prevent fatigue and achy joints, said Dr. Piliang.
Ward off infection by washing your hands frequently and using antibacterial wipes. “I wipe down the airplane seat, arm rest, seatbelt and tray table, and hotel phone, remotes and door handles,” said Kutch.
如果你在长途飞行或在车上花费了很多时间，确保你在运动，经常伸展，保持冷静。拉泰拉冥想控制住压力。如果你是新来的冥想 - 这Piliang博士也recommendeds - 考虑调解应用程序，如顶空和平静。
Also be prepared for the environment you’re heading into, said Dr. Weiss. Although warm, humid beach weather often helps psoriatic skin and joints, the hot, dry atmosphere of the desert or high-altitude destinations can deplete the skin’s moisture, as can cold air.
“Both cold and hot, dry weather dry out the skin and can cause it to crack, and when the skin barrier breaks down, microbes can get in and cause a subclinical infection and skin flares,” he explained.
旅行ers often run into unexpected problems in very dry environments, Dr. Piliang noted.
“因为它的温暖，他们认为自己的皮肤可能会更好，而是它的心跳变干，留下发痒，刺激领域，”她说。“用温和的肥皂，保湿非常好 - 你不能过火，在干燥的环境中。”
同样地，保护皮肤免受晒伤，即使在冬天地点和高海拔地区。“太阳会非常激烈在这些地方，如此反复，保湿是非常重要的，因为频繁使用防晒霜和太阳阻断服装和帽子，” Piliang博士说。
If your skin is drawing attention from curious bystanders, consider educating those you meet about psoriasis, suggested Lysakowska, who used to disguise her skin lesions with long gloves and skirts and strategically placed wraps. But not anymore. “Now, I just wear what’s comfortable and explain what (psoriasis) is — if I want to,” she said. “Some people will never understand the reality of living with psoriasis, and educating every single person you meet isn’t always practical. If someone doesn’t understand, move on.”
A checklist for smart travel
When traveling, taking these steps can help make for a more pleasant trip.
Schedule a pre-trip consultation with your doctor.
确保处方是最新的，以防万一索要书面稿。讨论计划与道路上的耀斑应对。如果你需要用注射器或锐器用于注射药物行程，索要一份解释性说明。当出国旅行，请检查您打算为将处方药纳入国家的任何特殊要求访问该国使馆的网站。一些外国政府要求的解释性说明从关于处方的医师之前进入该国将被授予。如果合适的话，打流感或肺炎疫苗，如果你的目的地是因循守旧，特别是在发展中国家，询问有关预防药物还是它的安全采取一定的预防接种。
However, if you are taking a biologic and need a live vaccine, such as that for yellow fever, talk to your doctor about how to proceed, as it is not recommended that those on biologics receive live vaccines, said Paul Yamauchi, M.D., assistant professor of dermatology, David Geffen School of Medicine at UCLA, Harbor-UCLA Medical Center Division of Dermatology, and adjunct associate professor, John Wayne Cancer Institute, Dermatology Institute & Skin Care Center in Santa Monica, California.
Pack carefully.
Take comfortable clothes, shoes, and other gear appropriate to your destination. If you’re headed to hot, humid areas, for example, bring light, loose, moisture-wicking or cotton clothing. If you’re going somewhere cold, take a hat, gloves, and scarf to protect as much skin as possible. Pack your own shampoo, moisturizer, and soap or cleanser, and don’t forget sunscreen and sun-blocking lip balm and clothing. Tuck whatever tools help you sleep well — a sleep mask, noise-reducing ear buds, or your favorite pillow — into your carry-on.
Organize your meds.
When flying, if possible, carry on your medications. Checking them in your luggage risks loss or damage from unregulated temperatures. Laws vary from state to state and country to country, but it’s a good idea to keep medication in its original packaging with labels attached, and even when it’s not required, doing so can speed up preflight screening. Some makers of biologic medications that need to be kept cool provide insulated travel kits, or you can purchase them online or carry a small cooler. Check in advance to see if your hotel room has a refrigerator; if not, some hotels will provide them upon request.
Understand airline security.
让运输安全管理局(TSA)officer know if you have solid or liquid medications that need special screening, and declare associated accessories, such as pumps or syringes. Medically necessary liquids, medications, and creams come with exemptions to the TSA’s 3-1-1 rule — normally no more than 3.4 ounces in clear containers in a clear quart-sized zip-top plastic bag. You can carry on more than 3.4 ounces and don’t need to put liquid meds in a plastic bag. During screening, remove them from your carry-on to be screened separately, and make sure freezer packs are at least partially frozen, or they could be confiscated. For more information on carrying on medications, visittsa.gov/travel/special-procedures.
Get assistance.
如果你有银屑病关节炎，可以考虑沿着你最有帮助的辅助设备自备，如与把手用具。使用轮式行李箱，机场随从，和酒店搬运工疲劳作战和超载关节保持。
By Emily Delzell for NPF